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Director of the International Alliance to Improve Support in Trisomy 13 and 18 Conditions
Location: Remote   Job Summary: The Director of the International Alliance to Improve Support in Trisomy 13 and 18 Conditions will lead and direct efforts to establish a landscape of support internationally for parents learning of the diagnosis of trisomy 13 and 18 and for the infants with these conditions. The purpose of the Alliance is to accomplish the following goals: create an environment where (1) parents receive current and balanced information about these conditions, their natural history and outcomes, and the options available to them; and (2) parents are empowered to participate in shared decision making with health care teams. The successful candidate will be a visionary leader who can chart the f


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